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Thread: Mark

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    Default Mark

    Hi there my fellow Avalonians, I don't do this often, in fact haven't done it yet, but I have a very special request.

    I go to visit my wife's 99 year old gramma at her Assisted Living Facility most evenings, and there is one resident there that just tears my heart out every time I see him. His name is Mark, he's a VERY young looking 60 years old, used to be a professional golfer, and has ALS. (Lou Gherig's Disease) It set upon him 20 years ago, cost him his marriage, his family, his career, and now virtually ALL mobility. Thank god for his special scooter he can operate by barely moving the tip of one finger, otherwise he would have been totally bedridden some time back.

    It's hard to imagine the solitary nightmare he lives, yet he seems to be one of those people with an unbreakable spirit. After several months of fruitless effort, just recently I finally was able to begin to interpret the noises he makes as words. You know what it was I finally understood he was trying to tell me one day? "How are you doing"? Wow.

    Anyway, if you all could think to send Mark some positive healing energy from time to time, that would be really great.

    Thank You and Cheers,
    Fred

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    Default Re: Mark

    Damn, what a way to spend the last part of your life.
    Kudos to you for taking the time to figure out what is going on.
    I try to think how I would feel if I were in that position.
    I think it would suck and I would appreciate anything that people would do to help me.
    Come on avalonuggets, it is that time again.
    We need as many as possible to help Mark.

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    United States Honored, Retired Member. Sierra passed in April 2021.
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    Default Re: Mark

    You got it Fred. It sux big time to not be able to communicate...

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    Default Re: Mark

    Celiacs Disease has been linked ALS it seems. Might be worth trying a gluten free diet for a while. Tests for gluten sensitivity can give false negatives as well.

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    Canada Avalon Member Ernie Nemeth's Avatar
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    Default Re: Mark

    Will keep Mark in my mind as I pray.

    Thanks Fred.

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    Default Re: Mark

    Mark just got a big whammo wave from me Fred - I'm still tingling .... xoxo

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    Default Re: Mark

    Quote Posted by Sierra (here)
    You got it Fred. It sux big time to not be able to communicate...
    Yes Sierra, hard to imagine. Not to knock the old folks there, I love them all, know them by name, know parts of their stories, try to spend a minute or two when I see each of them, give a hug, and so on, so don't get me wrong here. But, to not only be with it mentally and not be able to communicate, but probably 2/3 of the dear old folks there are just out to pasture. Dare I say I haven't overheard too many(none) interesting conversations there.

    I think he might even get into a place like Avalon, if it could be arranged to get him outfitted with some kind of high tech computer apparatus. I just found out he could still manage to work a computer until a couple of years ago, but then that left him too.

    Thanks very much you guys!!!

    Cheers,
    Fred

    Oh, almost forgot. He emphatically nodded his head when I asked if he believes in miracles.

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    Default Re: Mark

    Hello Mark I'm sending you good vibrations, a long lasting hug that comes from the heart, the same way I do with trees.

    I'm a tree hugger(but don't tell all the trees, cause I can't hug them all at the same time.....or maybe I could if I try to!!??

    Thank you Fred, you are a good man, another hug for you too!

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    Default Re: Mark

    Hi Fred,

    How wonderful that you see Mark!!! and not his disability. Positive energy is on the menu for both of you and yes who knows maybe a computer companion to help him access the Avalon Forum. What great time consuming, learning, companionship and information awaits him Prayers for all good things to greet Mark as what the heck they have already started with YOU!!
    Love and Light Always/Sandy

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    Default Re: Mark

    Fred-
    I will say a special prayer for Mark, and for you, for being so kind to him. I believe that people who care about those less fortunate have great rewards waiting for them in heaven. As my people would say, you have done a "Mitzvah"- a good deed.

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    Default Re: Mark

    Fred S, how kind and wonderful you are to share Mark's story with us. Please tell him for me ~ to just hang on a little bit longer. In a matter of a few months at most, there will be a cure for ALS and all the other diseases put upon us by the Powers that Were. Most if not all of them will go away as new cures have been found and will be released before the end of 2011.

    Tell Mark that he is loved and cherished and that we are all sending loving hugs and blessings upon him. Special Angels surround him, too, who will see him through this last little bit before he is fully healed.

    Tell him to have faith and open his heart to not only miracles but full healing and light to come upon him now and in the days ahead. It won't be long now ~ before a whole new Earth is born and he will regain all he thought was lost including his mobility and a new family, who loves and cherishes him unconditionally.

    Big hugs to both of you and please know how precious it is ~ to be alive today to see and to witness all the miracles happen that we will be witnessing soon!
    Much love! xoxoxoxox

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    Default Re: Mark

    Fred thank you so much for being with Mark, and bless your heart for visiting that facility often.

    Older people are more likely to leave before us, and after the life they spent, it's good to to have one good soul near them at least.

    As for Mark, God bless his heart for reminding what the phrase "his soul shines through" means!

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    Default Re: Mark

    Sounds like these lyrics were written for Mark, sending prayers and healing his way.

    Give me a word
    Give me a sign
    Show me where to look
    Tell me what will I find
    Lay me on the ground
    Fly me in the sky
    Show me where to look
    Tell me what will I find
    Whoa, never let your light shine down

    Love is in the water
    Love is in the air
    Show me where to look
    Tell me will love be there
    Teach me how to speak
    Teach me how to share
    Teach me where to go
    Tell me will love be there
    Whoa, never let your light shine down

    I'm gonna let it shine
    I'm gonna let it shine
    Heaven send a light, let it shine on me
    Hey Yeah
    Heaven send a light, let it shine on me
    It's gonna shine on
    Shine on Me
    Its gonna shine on
    Well come on and shine
    Last edited by benevolentcrow; 29th July 2011 at 02:16.

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    Default Re: Mark

    In general terms, I offer that which enables the innermost desires of Mark to work out with the least amount of suffering.

    That said, if Mark were to consent to more "direct action" I would be up for it, but until consent/permission is granted one is somewhat hamstrung.
    -- Let the truth be known by all, let the truth be known by all, let the truth be known by all --

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    Default Re: Mark

    Good work so far avalonuggets, but we have way more people who are able to help.
    Where are you all?

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    Default Re: Mark

    Dear Mark,
    My wife and I cared for someone for two years with your condition, we know what you are going through and your family.
    You are reliant for everything on those around you. Your mind is clear but the body will not do as it is asked.
    Like everyone else on this site we send you all our love, may your clear mind be at peace.

    Dear Fred,
    If you would like any information about communication devices, I can help. It is quite simple to put a little laser light onto a pair of glasses, and have an alphabet sheet in front of him, so he can spell out his needs with the precise beam of light. This is if he is nearly totally paralysed. How is his breathing?

    All the best
    Tony

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    Default Re: Mark

    Quote Posted by Lord Sidious (here)
    Good work so far avalonuggets, but we have way more people who are able to help.
    Where are you all?

    Raises hand....


    I chose a dandelion as my company logo.... one of the reasons: I choose to see flowers where others see weeds.

    Bless you Fred!!!!
    .... be gentle with your anger. Sixto Rodriguez, Cape Town 20.02.2013

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    Default Re: Mark

    My thoughts and prayers are for Mark right now - and thanks Fred for posting this, please keep us in touch with his progress.

    Peace,

    Pickle
    "...when I was a child, I caught a fleeting glimpse out of the corner of my eye. I turned to look but it was gone, I cannot put my finger on it now. The child is grown, the dream is gone....."

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    Default Re: Mark

    Mark

    Leaving love and inner peace at your door
    " My goal in life is to be as good a person as my dog already thinks I am "

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    Default Re: Mark

    Lookingforavalonuggethealersbump.

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