At A Loss Here... (A friend with Hidradenitis Suppurativa, or "HS")

[Mike]

I have a friend who is suffering from a relatively unknown condition called hidradenitis suppurativa, or "HS".

I didn't realize how horrific it really was until he sent me some pictures recently. I was absolutely shocked. If you have the stomach for it, google it and view the images.


It's characterized by extremely painful bumps, rashes, and skin tunneling. It's a brutal condition. Debilitating. If he slips up and goes off his strict diet, it might mean several days in bed..the pain being too great to function in any kind of meaningful way.

This is a 15 minute 'Ted Talk' on the topic:

Source: https://youtube.com/watch?v=NGEYEFBZPa8

He has been sending me cryptic texts lately, implying suicide. He's attempted this once before, so I take this very very seriously. I've made suggestions to him regarding diet and sent him various supplements, with minimal success. I've tried my best to offer moral support too, but I'm just utterly exhausted at this point. Spent. Conversation is completely draining, but if I don't pick up the phone I sit around worrying that this might be the day he kills himself.

I'm seeking advice here. Does anyone know about this condition, or know anyone who does who has had some success treating it? Any and all input welcome. Thx.

[Michelle Marie]

Wow! That's a tough one, Mike.

I'll give it ((+ you & he)) some thought and prayers.

I see the picture on the video. I don't think I could stomach watching it. (Just to be honest.)

MM

[Joe from the Carolinas]

I think this would be a good situation to be referred to a mental health counselor, if the history is there as well as current health crisis, the red flags are there.

Regarding the medical condition, it is very treatable by dermatology, with many medication options as well as surgery in severe cases. Here’s a link to an older article from 2015. It might give him some hope and motivation to shop around for a better dermatologist.

https://www.ncbi.nlm.nih.gov/pubmed/26443004

[onawah]

You have my sympathy Mike. I've had to deal with 3 family members who committed suicide.
You may not be able to help your friend, but please take good care of yourself while trying, and don't overdo it. .
It may actually have been caused by vaccines, which of course would be denied by medical authorities who misdiagnose many conditions that are actually caused by vaccines, attributing them to other causes.
Dr. Rebecca Carley has been persecuted incredibly for her work in exposing that, but I think she has also been successful in helping treat vaccine damage. She uses diet and homeopathy a lot in her cures.
I don't know anyone personally who has consulted with her, however, though there are testimonials on her sites.
I think fresh, raw aloe vera would probably help a lot taken daily, as it helps tremendously with many similar conditions.

[Jayke]

From first glances on google images, it looks similar to pellegra or a herpes type infection to me, both caused by Lysine/niacin deficiency.

https://www.curezone.org/forums/fm.asp?i=1941475

But obviously with the mental health side of things, it’s difficult to make suggestions that would require a trial and error approach to cure, especially if any further setback is likely to depress them even more.

Ive got a friend who has severe eczema all over his body, his skin is red raw and gets so dry and the joints so stiff it’s like he’s got severe arthritis. His problem is that he’s got a psychological barrier that only lets him eat 5 foods (mostly a pure sugar diet) he won’t touch anything else, regardless of how nutritious it would be for him.

It’s hard to make suggestions unless they’ve got that fighting spirit where they’re prepared to test out new things to narrow down what works. Tough call.

[Jean-Marie]

Here is how I would treat it Mike,

Start with the simple things that do not cause any complications.

Diamateacous Earth - 1 teaspoon in water or juice per day. This will eliminate toxins/parasites from the body and it improves the joints, ligaments, bones, skin, hair and nails.

Grapefruit Seed Extract - start with 10 drops in a water bottle per day and then increase it to 20. This will eliminate things like Yeast and enterobacters from the gut/intestines. It is antibacterial, antiviral, antimicrobial and antifungal properties, and it fights candida, kills antibiotic-resistant UTIs, remedies fungal infections, relieves athletes foot and nail fungus, and treats digestive disturbances associated with eczema.

They are simple and the only reactions I would anticipate is die off symptoms from yeast and parasites. Which can make you feel under the weather for a few days. Some people feel them, some do not.

Also make sure your friend is staying away from all sugar and as much wheat flour as possible.

I hope this helps

[Foxie Loxie]

Excellent advice, Jean-Marie!

It can be SO draining when one is involved in such desperate situations, Mike. You do need to keep a balance for your own "sanity". In the end, each of us is responsible for our own body maintenance & your friend must as well.

It is not your "fault" that he has this condition, but you can be sure you both will be in our thoughts & prayers. Take care of yourself so as not to be drained of the energy you need to keep yourself going.

[RunningDeer]

With the elimination of stress and a diet overhaul, I cured asthma, acne, allergies, psoriasis, and inflammation of the joints. After my son’s suicide, I needed two different inhalers, plus another drug for the nebulizer machine to breathe. I benefited from counseling because I was committed to do the work between the visits, which for me was the most important part. (I had extreme suicidal thoughts.) A balanced body helps with emotional and mental stability.

I was going to add hidradenitis suppurativa photos but decided to add a link instead.

Hidradenitis suppurativa is an autoimmune disease. There’s a chapter in “The China Study,” by T. Colin Campbell, PhD & Thomas M. Campbell II, MD devoted to “Autoimmune Disease”. The book title is misleading. There are a lot of studies included. Here’s a free pdf from the old 2006 version. The book was revised and expanded in 2016.

It’s worth it to purchase a hard copy.

There are 3,897 reviews on Amazon.

[Dennis Leahy]

At the risk of me becoming the poster child for cannabis around Avalon...

If you are alive, it is because your body produces cannabinoids. Cannabinoids made by the body - endocannabinoids - function as transmitters to receptors all throughout the body, and are involved in many (with enough research, that might be "all", not just "many") systems in the body. In fact, the endocannabinoid system is considered to be the "super-regulatory system" in the body. It regulates other systems, and is critically involved in everyday functioning, repair, and maintenance of the body. Your first experience with taking-in cannabinoids from an external source was at your mother's breast - cannabinoids in her milk caused you to 'latch on' to her nipple.

The US government has relentlessly disallowed cannabis research on humans, and with the US's "influence" (control) over the UN, caused cannabis and cannabis research to be illegal in most other countries. The one and only country that can laugh directly in the face of the US government, and do whatever the hell they want to do, is Israel. Nobody tells Israel what to do. And so, extensive research into cannabis as medicine has been done in Israel. In fact, Israeli Dr. Raphael Mechoulam is sort of the grandfather of medical cannabis research.

"Raphael Mechoulam's major scientific interest is the chemistry and pharmacology of cannabinoids. He and his research group succeeded in the total synthesis of the major plant cannabinoids Δ9-tetrahydrocannabinol, cannabidiol, cannabigerol and various others. Another research project initiated by him led to the isolation of the first described endocannabinoid anandamide which was isolated and characterized by two of his postdoctoral researchers, Lumír Ondřej Hanuš and William Devane. Another endogenous cannabinoid, 2-AG, was soon discovered by Shimon Ben-Shabat, one of his PhD students. He published more than 350 scientific articles."

A small (22 patient) Israeli pre-clinical trial/study was reported recently that pitted cannabis against Crohn's Disease, an autoimmune disease. Surprisingly, patients smoked joints rather than ingesting the extracted oil. Half the patients that smoked 2 joints a day got (temporary) remission of symptoms; once they stopped the 8 weeks of daily smoking, Crohn's symptoms reappeared. My take on that is that the body used the THC as if it was given the endocannabinoid anandamide. The body already knows how to handle the problem, and with enough of the THC mimicking anandamide, was able to alter the body chemistry (endocrine system, I'd guess) to alleviate the symptoms. Once the cannabis is stopped, symptoms return because the body is actually deficient in endogenous cannabinoids.

Another doctor, Dr. Courtney Cox, believes that since cannabinoids are required by the body for normal regulatory functioning, that cannabinoids should be listed as "required" - the same way we list vitamin D as required, yet our body makes some.

I do not suggest smoking 2 joints a day. Smoking - combustion of the cannabis - releases numerous toxic substances. All smoke is carcinogenic. The THC in cannabis smoke appears to be more anti-cancer than the smoke's toxins are carcinogenic. Still, smoking is the worst way to take this medicine, as medicine. I recommend ingesting full-extract cannabis oil instead of smoking. Just like someone whose body does not make enough vitamin D takes a vitamin D supplement every day - for life, so could your friend take a dose of cannabis oil every day. In other words, it might not cure the disease, but he could have a life if he could stop (or greatly attenuate) the symptoms. Whatever daily dosage amount of ingested THC is required to do the job might be psychoactive at first, but the human body acclimates. (You build-up a tolerance to the psychoactive effects of the daily dosage. Cancer patients often get to the point where they consume a full gram of THC per day, for months.)

Remember, externally-obtained cannabinoids (phytocannabinoids from cannabis) mimic endogenous cannabinoids, the critical messenger molecules of our super-regulatory endocannabinoid system. If maintenance and healing are happening within the body, cannabinoids are involved. If we supply extra cannabinoids, more maintenance and healing tasks can take place, and at a faster pace.

US government be damned, many thousands of individuals have taken large doses of cannabis oil and have cured numerous forms of cancer. Once I started seeing giant lists of diseases/conditions that cannabis helps or cures, I became more than skeptical, and was angry that this misinformation (which is what I thought it was) was going to be used to discredit cannabis against cancer. So, I researched. Now I understand HOW cannabis (especially THC) works, and that it happens to mimic the body's anandamide molecule which is the prime messenger molecule of our super-regulatory system, it made sense. My conjecture is that there is no condition and no disease that will not be helped (at least) or cured by taking medicinal, Full Extract Cannabis Oil (FECO.)

Your friend is looking for a cure from an "incurable disease." Maybe it really is incurable; maybe it isn't. Maybe it's just that the pharmaceutical companies have nothing that helps, and maybe that is why the condition is considered as "incurable." If your friend has not yet tried large doses of FECO cannabis oil against the HS, I'd say it is likely he has not tried the most promising remedy.

[Mike]

Thanks everyone for posting here! (And thanks to the people who msg'ed me privately)

Lots of good stuff.

I'm going to talk to my friend later tonight and pass some of this on to him.

[Omni]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

[RunningDeer]

Posted by Omni (here)
I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

The mental health system saved my life way back then. I attribute it to me doing the work and digging deep into the sorrow and the loss.

Today, I wouldn't need to partake in the system because mental wellness is how I live each day through all the ways we share on the forum. And most importantly it is because absolutely no pain will come close to the loss of my son.

♡

[Daozen]

Cannabis oil looks like it might work. Liposomal C and Iodine are near essential in most conditions. A lot of sellers have trial sizes available on iherb. It should be simple enough to order some....

[Joe from the Carolinas]

Posted by Omni (here)
I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

Skull trephining dates back over 6000 years, long before the rise of the nazi regime. People have been treating and caring for mental stuff a long time. I’m pretty sure cannabis use dates that far back too!

[Omni]

Posted by RunningDeer (here)

Posted by Omni (here)
I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

The mental health system saved my life way back then. I attribute it to me doing the work and digging deep into the sorrow and the loss.

Today, I wouldn't need to partake in the system because mental wellness is how I live each day through all the ways we share on the forum. And most importantly it is because absolutely no pain will come close to the loss of my son.

The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

[Omni]

Posted by Joe from the Carolinas (here)

Posted by Omni (here)
I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

Skull trephining dates back over 6000 years, long before the rise of the nazi regime. People have been treating and caring for mental stuff a long time. I’m pretty sure cannabis use dates that far back too!

Trauma based mind control dates back to ancient Egypt and the book of the dead, does that make it not a Nazi system? And I wouldn't recommend drilling a hole in the skull. So unless "skull trephining" has something not defined where I looked I wouldn't recommend that either.

[Bubu]

Plus 1 on CBD and THC. I will add another wonder herb. goosegrass

I've been dispensing free tea and have witness the magic in almost all cases. I have once visited a friend who is suffering from high fever I made him a goose grass tea. While sipping he started perspiring and soon was dense and had to change clothes. Less than an hour fever is gone as if the goose grass kick out all the toxins, via perspiration, that is causing the fever. Goose grass is said to cleanse the blood and nerves. No wonder if toxins is the cause. also my number one immune booster, ganoderma mushroom.
To anyone who wants to try goose grass please read detox reactions I have witness or heard most of them from recipients. My conclusion after years of study and trials is that there is no single miracle cure. We need variety as in food. Well as I have mentioned many times our body works like a factory it produces all kinds of substance that the body needs CBD THC booldcells and all included therefore it needs raw materials, various raw materials. So that when I dispense I give a variety of veggies and known medicinal herbs. But in the modern toxic ages goose grass always comes first. Sheep sorrel and burdock roots and neem are also detox herbs.

[Bubu]

detox reactions

http://www.greekmedicine.net/Princip...ng_Crisis.html

[Advancing HS Perception]

clarification

[RunningDeer]

Posted by Omni (here)
The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

I have an extremely high tolerance for pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.

(updated post)