At A Loss Here... (A friend with Hidradenitis Suppurativa, or "HS")

[Mike]

I have a friend who is suffering from a relatively unknown condition called hidradenitis suppurativa, or "HS".

I didn't realize how horrific it really was until he sent me some pictures recently. I was absolutely shocked. If you have the stomach for it, google it and view the images.


It's characterized by extremely painful bumps, rashes, and skin tunneling. It's a brutal condition. Debilitating. If he slips up and goes off his strict diet, it might mean several days in bed..the pain being too great to function in any kind of meaningful way.

This is a 15 minute 'Ted Talk' on the topic:
NGEYEFBZPa8

He has been sending me cryptic texts lately, implying suicide. He's attempted this once before, so I take this very very seriously. I've made suggestions to him regarding diet and sent him various supplements, with minimal success. I've tried my best to offer moral support too, but I'm just utterly exhausted at this point. Spent. Conversation is completely draining, but if I don't pick up the phone I sit around worrying that this might be the day he kills himself.

I'm seeking advice here. Does anyone know about this condition, or know anyone who does who has had some success treating it? Any and all input welcome. Thx.

[Michelle Marie]

Wow! That's a tough one, Mike.

I'll give it ((+ you & he)) some thought and prayers. :heart:

I see the picture on the video. I don't think I could stomach watching it. (Just to be honest.)

MM

[Joe from the Carolinas]

I think this would be a good situation to be referred to a mental health counselor, if the history is there as well as current health crisis, the red flags are there.

Regarding the medical condition, it is very treatable by dermatology, with many medication options as well as surgery in severe cases. Here’s a link to an older article from 2015. It might give him some hope and motivation to shop around for a better dermatologist.

https://www.ncbi.nlm.nih.gov/pubmed/26443004

[onawah]

You have my sympathy Mike. I've had to deal with 3 family members who committed suicide.
You may not be able to help your friend, but please take good care of yourself while trying, and don't overdo it. .
It may actually have been caused by vaccines, which of course would be denied by medical authorities who misdiagnose many conditions that are actually caused by vaccines, attributing them to other causes.
Dr. Rebecca Carley has been persecuted incredibly for her work in exposing that, but I think she has also been successful in helping treat vaccine damage. She uses diet and homeopathy a lot in her cures.
I don't know anyone personally who has consulted with her, however, though there are testimonials on her sites.
I think fresh, raw aloe vera would probably help a lot taken daily, as it helps tremendously with many similar conditions.

[Jayke]

From first glances on google images, it looks similar to pellegra or a herpes type infection to me, both caused by Lysine/niacin deficiency.

https://www.curezone.org/forums/fm.asp?i=1941475

But obviously with the mental health side of things, it’s difficult to make suggestions that would require a trial and error approach to cure, especially if any further setback is likely to depress them even more.

Ive got a friend who has severe eczema all over his body, his skin is red raw and gets so dry and the joints so stiff it’s like he’s got severe arthritis. His problem is that he’s got a psychological barrier that only lets him eat 5 foods (mostly a pure sugar diet) he won’t touch anything else, regardless of how nutritious it would be for him.

It’s hard to make suggestions unless they’ve got that fighting spirit where they’re prepared to test out new things to narrow down what works. Tough call.

[Jean-Marie]

Here is how I would treat it Mike,

Start with the simple things that do not cause any complications.

Diamateacous Earth - 1 teaspoon in water or juice per day. This will eliminate toxins/parasites from the body and it improves the joints, ligaments, bones, skin, hair and nails.

Grapefruit Seed Extract - start with 10 drops in a water bottle per day and then increase it to 20. This will eliminate things like Yeast and enterobacters from the gut/intestines. It is antibacterial, antiviral, antimicrobial and antifungal properties, and it fights candida, kills antibiotic-resistant UTIs, remedies fungal infections, relieves athletes foot and nail fungus, and treats digestive disturbances associated with eczema.

They are simple and the only reactions I would anticipate is die off symptoms from yeast and parasites. Which can make you feel under the weather for a few days. Some people feel them, some do not.

Also make sure your friend is staying away from all sugar and as much wheat flour as possible.

I hope this helps :bearhug:

[Foxie Loxie]

Excellent advice, Jean-Marie! :flower:

It can be SO draining when one is involved in such desperate situations, Mike. You do need to keep a balance for your own "sanity". In the end, each of us is responsible for our own body maintenance & your friend must as well.

It is not your "fault" that he has this condition, but you can be sure you both will be in our thoughts & prayers. Take care of yourself so as not to be drained of the energy you need to keep yourself going. :heart:

[RunningDeer]

With the elimination of stress and a diet overhaul, I cured asthma, acne, allergies, psoriasis, and inflammation of the joints. After my son’s suicide, I needed two different inhalers, plus another drug for the nebulizer machine to breathe. I benefited from counseling because I was committed to do the work between the visits, which for me was the most important part. (I had extreme suicidal thoughts.) A balanced body helps with emotional and mental stability.

I was going to add hidradenitis suppurativa photos (https://www.google.com/search?q=hidradenitis+suppurativa&client=safari&rls=en&source=lnms&tbm=isch&sa=X&ved=0ahUKEwirzMjm89rbAhUq44MKHflcDzgQ_AUICigB&biw=1069&bih=580) but decided to add a link instead.

Hidradenitis suppurativa is an autoimmune disease. There’s a chapter in “The China Study,” by T. Colin Campbell, PhD & Thomas M. Campbell II, MD devoted to “Autoimmune Disease”. The book title is misleading. There are a lot of studies included. Here’s a free pdf from the old 2006 version (http://www.socakajak-klub.si/mma/The+China+Study.pdf/20111116065942/). The book was revised and expanded in 2016.

It’s worth it to purchase a hard copy.

There are 3,897 reviews (https://www.amazon.com/China-Study-Comprehensive-Nutrition-Implications/dp/1941631568/ref=sr_1_1?ie=UTF8&qid=1529247746&sr=8-1&keywords=The+China+Study) on Amazon.
https://i.imgur.com/TfYAcgm.jpg


https://i.imgur.com/wGzLvSa.jpg

[Dennis Leahy]

At the risk of me becoming the poster child for cannabis around Avalon...

If you are alive, it is because your body produces cannabinoids. Cannabinoids made by the body - endocannabinoids - function as transmitters to receptors all throughout the body, and are involved in many (with enough research, that might be "all", not just "many") systems in the body. In fact, the endocannabinoid system is considered to be the "super-regulatory system" in the body. It regulates other systems, and is critically involved in everyday functioning, repair, and maintenance of the body. Your first experience with taking-in cannabinoids from an external source was at your mother's breast - cannabinoids in her milk caused you to 'latch on' to her nipple.

The US government has relentlessly disallowed cannabis research on humans, and with the US's "influence" (control) over the UN, caused cannabis and cannabis research to be illegal in most other countries. The one and only country that can laugh directly in the face of the US government, and do whatever the hell they want to do, is Israel. Nobody tells Israel what to do. And so, extensive research into cannabis as medicine has been done in Israel. In fact, Israeli Dr. Raphael Mechoulam is sort of the grandfather of medical cannabis research.
"Raphael Mechoulam's major scientific interest is the chemistry and pharmacology of cannabinoids (https://en.wikipedia.org/wiki/Cannabinoids). He and his research group succeeded in the total synthesis of the major plant cannabinoids Δ9-tetrahydrocannabinol (https://en.wikipedia.org/wiki/Tetrahydrocannabinol), cannabidiol (https://en.wikipedia.org/wiki/Cannabidiol), cannabigerol (https://en.wikipedia.org/wiki/Cannabigerol) and various others. Another research project initiated by him led to the isolation of the first described endocannabinoid (https://en.wikipedia.org/wiki/Endocannabinoid) anandamide (https://en.wikipedia.org/wiki/Anandamide) which was isolated and characterized by two of his postdoctoral researchers, Lumír Ondřej Hanuš (https://en.wikipedia.org/wiki/Lum%C3%ADr_Ond%C5%99ej_Hanu%C5%A1) and William Devane. Another endogenous (https://en.wikipedia.org/wiki/Endogenous) cannabinoid, 2-AG (https://en.wikipedia.org/wiki/2-AG), was soon discovered by Shimon Ben-Shabat, one of his PhD students. He published more than 350 scientific articles."
A small (22 patient) Israeli pre-clinical trial/study was reported recently that pitted cannabis against Crohn's Disease, an autoimmune disease. Surprisingly, patients smoked joints rather than ingesting the extracted oil. Half the patients that smoked 2 joints a day got (temporary) remission of symptoms; once they stopped the 8 weeks of daily smoking, Crohn's symptoms reappeared. My take on that is that the body used the THC as if it was given the endocannabinoid anandamide. The body already knows how to handle the problem, and with enough of the THC mimicking anandamide, was able to alter the body chemistry (endocrine system, I'd guess) to alleviate the symptoms. Once the cannabis is stopped, symptoms return because the body is actually deficient in endogenous cannabinoids.

Another doctor, Dr. Courtney Cox, believes that since cannabinoids are required by the body for normal regulatory functioning, that cannabinoids should be listed as "required" - the same way we list vitamin D as required, yet our body makes some.

I do not suggest smoking 2 joints a day. Smoking - combustion of the cannabis - releases numerous toxic substances. All smoke is carcinogenic. The THC in cannabis smoke appears (https://www.cureyourowncancer.org/1974-study-showing-cannabis-kills-cancer-cells-antineoplastic-activity-of-cannabinoids.html) to be more anti-cancer than the smoke's toxins are carcinogenic. Still, smoking is the worst way to take this medicine, as medicine. I recommend ingesting full-extract cannabis oil instead of smoking. Just like someone whose body does not make enough vitamin D takes a vitamin D supplement every day - for life, so could your friend take a dose of cannabis oil every day. In other words, it might not cure the disease, but he could have a life if he could stop (or greatly attenuate) the symptoms. Whatever daily dosage amount of ingested THC is required to do the job might be psychoactive at first, but the human body acclimates. (You build-up a tolerance to the psychoactive effects of the daily dosage. Cancer patients often get to the point where they consume a full gram of THC per day, for months.)

Remember, externally-obtained cannabinoids (phytocannabinoids from cannabis) mimic endogenous cannabinoids, the critical messenger molecules of our super-regulatory endocannabinoid system. If maintenance and healing are happening within the body, cannabinoids are involved. If we supply extra cannabinoids, more maintenance and healing tasks can take place, and at a faster pace.

US government be damned, many thousands of individuals have taken large doses of cannabis oil and have cured numerous forms of cancer. Once I started seeing giant lists of diseases/conditions that cannabis helps or cures, I became more than skeptical, and was angry that this misinformation (which is what I thought it was) was going to be used to discredit cannabis against cancer. So, I researched. Now I understand HOW cannabis (especially THC) works, and that it happens to mimic the body's anandamide molecule which is the prime messenger molecule of our super-regulatory system, it made sense. My conjecture is that there is no condition and no disease that will not be helped (at least) or cured by taking medicinal, Full Extract Cannabis Oil (FECO.)

Your friend is looking for a cure from an "incurable disease." Maybe it really is incurable; maybe it isn't. Maybe it's just that the pharmaceutical companies have nothing that helps, and maybe that is why the condition is considered as "incurable." If your friend has not yet tried large doses of FECO cannabis oil against the HS, I'd say it is likely he has not tried the most promising remedy.

[Mike]

Thanks everyone for posting here! (And thanks to the people who msg'ed me privately)

Lots of good stuff.

I'm going to talk to my friend later tonight and pass some of this on to him.

[Omni]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

[RunningDeer]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

The mental health system saved my life way back then. I attribute it to me doing the work and digging deep into the sorrow and the loss.

Today, I wouldn't need to partake in the system because mental wellness is how I live each day through all the ways we share on the forum. And most importantly it is because absolutely no pain will come close to the loss of my son.


https://i.imgur.com/sdBvXyv.jpg
♡

[Daozen]

Cannabis oil looks like it might work. Liposomal C and Iodine are near essential in most conditions. A lot of sellers have trial sizes available on iherb. It should be simple enough to order some....

[Joe from the Carolinas]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

Skull trephining dates back over 6000 years, long before the rise of the nazi regime. People have been treating and caring for mental stuff a long time. I’m pretty sure cannabis use dates that far back too! :)

[Omni]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

The mental health system saved my life way back then. I attribute it to me doing the work and digging deep into the sorrow and the loss.

Today, I wouldn't need to partake in the system because mental wellness is how I live each day through all the ways we share on the forum. And most importantly it is because absolutely no pain will come close to the loss of my son.
The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

[Omni]

I would try cannabis and CBD personally. Mental health (or better said - mental illness) is largely a Nazi construct so I wouldn't recommend that system.

Skull trephining dates back over 6000 years, long before the rise of the nazi regime. People have been treating and caring for mental stuff a long time. I’m pretty sure cannabis use dates that far back too! :)
Trauma based mind control dates back to ancient Egypt and the book of the dead, does that make it not a Nazi system? And I wouldn't recommend drilling a hole in the skull. So unless "skull trephining" has something not defined where I looked I wouldn't recommend that either.

[Bubu]

Plus 1 on CBD and THC. I will add another wonder herb. goosehttps://oak.ppws.vt.edu/~flessner/weedguide/goosegrass9-4.jpggrass

I've been dispensing free tea and have witness the magic in almost all cases. I have once visited a friend who is suffering from high fever I made him a goose grass tea. While sipping he started perspiring and soon was dense and had to change clothes. Less than an hour fever is gone as if the goose grass kick out all the toxins, via perspiration, that is causing the fever. Goose grass is said to cleanse the blood and nerves. No wonder if toxins is the cause. also my number one immune booster, ganoderma mushroom.
To anyone who wants to try goose grass please read detox reactions I have witness or heard most of them from recipients. My conclusion after years of study and trials is that there is no single miracle cure. We need variety as in food. Well as I have mentioned many times our body works like a factory it produces all kinds of substance that the body needs CBD THC booldcells and all included therefore it needs raw materials, various raw materials. So that when I dispense I give a variety of veggies and known medicinal herbs. But in the modern toxic ages goose grass always comes first. Sheep sorrel and burdock roots and neem are also detox herbs.

[Bubu]

detox reactions

http://www.greekmedicine.net/Principles_of_Treatment/Understanding_the_Healing_Crisis.html

[Advancing HS Perception]

clarification

[RunningDeer]

The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

I have an extremely high tolerance for pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.

(updated post)

[Mike]

Hi Mike and all,

I have HS too. The following link may help your friend Mike.
http://www.hs-foundation.org/mental-emotional-health/

I should disclose that I am a co-founder of this above foundation, however I have not been formally involved with the org since the end of 2008.

On this next page your friend can watch a video from a new non profit focused on Hs support and advocacy, Hope for HS, in Detroit Michigan. The video was an eye-opener for me, and very beneficial for me from a mental health perspective.

http://www.hs-foundation.org/support/

HS is a difficult disease to come to terms with, difficult to live with. Medical studies confirm there is a high emotional toll taken by the disease. It is very painful. People with HS may have a higher risk for many things including anxiety, depression, and heart disease. There is a risk of completed suicide.

For over 20 years I have had many people, including the leading experts tell me what it is, and how it can be treated. I still have Hidradenitis Suppurativa. More research is needed.

Mike, it is a very difficult disease to talk about. My family do not even understand what I have gone through. People with HS may need professional mental health care, me included.

All my best,

Rob Howes
Melbourne Australia
robertjameshowes@gmail.com



Hi Rob:thumbsup:

Hey thanks so much for posting here! It's very much appreciated.

The last suggestion I made to my friend went sideways. It was a little more than a suggestion - I actually sent him a bottle of a supplement called 'serrapeptase, which, on paper, looked like the perfect supplement for him because it's anti inflammatory and known for its unique ability to heal scars. Well he had a reaction to it with a nasty break out.

He doesn't trust my advice at the moment (and I don't blame him). Do you have any treatment suggestions? ...diet or supplement wise that you've had success with?

He has some success with a very strict diet, but he keeps lapsing on it. Tough situation. He really has to live like a monk.

[Mike]

The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

The loss of my son is like no other. I say this as one that lived with all the colors of the rainbow across my body. I still have tender spots on my scalp some 53+ years later where I was picked up by my hair only to be slapped down again. When it was over, my job was to sweep up the hair off the floor.

I have an extremely high tolerance for all types of pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.



:heart::flower::hug:

[RunningDeer]

:heart::flower::hug:

Thank you, Mike. http://avalonlibrary.net/paula/smilies/come-in-hug.gif
Everyone is resilient. Each needs to prove it for herself/himself and build upon the experiences.

Disclaimer: IMO

http://avalonlibrary.net/paula/smilies/work-in-progress2.gif

♡

[Foxie Loxie]

I always LOVE the "I am a work in progress" sign because it is SO true!!! :bearhug:

[Joe from the Carolinas]

The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

The loss of my son is like no other. I say this as one that lived with all the colors of the rainbow across my body. I still have tender spots on my scalp some 53+ years later where I was picked up by my hair only to be slapped down again. When it was over, my job was to sweep up the hair off the floor.

I have an extremely high tolerance for all types of pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.

Well said RunningDeer - critical and extreme mood states require critical and extreme intervention, under the protections of the law, of course.

[Tomkoyote]

The last suggestion I made to my friend went sideways. It was a little more than a suggestion - I actually sent him a bottle of a supplement called 'serrapeptase, which, on paper, looked like the perfect supplement for him because it's anti inflammatory and known for its unique ability to heal scars. Well he had a reaction to it with a nasty break out.

He doesn't trust my advice at the moment (and I don't blame him). Do you have any treatment suggestions? ...diet or supplement wise that you've had success with?

He has some success with a very strict diet, but he keeps lapsing on it. Tough situation. He really has to live like a monk.
Serrapeptase is an enzyme...

He can start with the following:
- Get 2 lb of Activated charcoal (preferably Food Grade, Amazon has it). Use it topically and internally.
Internally: 1 teasp 3x/day on empty stomach (1hr before meal, 2hr after meal). Put the powder in a glass, add water, stir, let it sit for 2/3 mnts, stir again and drink.
Topically: take AC bath - 1 cup in hot water. Sit in it at least for 30 mnts, longer is better. I know it's messy but worth it.
- Get 1 lb of Milk Thistle seeds. Don't buy the capsules of ground stuff (no potency left). Grind small amounts at a time enough for 4/5 days. Store in small glass jar in fridge. Take 1 teasp before each meals 3x/day

It is unlikely that he'll experience bad reaction. He should see some results in 8/10 days. If there is relief, post back and we'll move to the next step.

[Omni]

The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

The loss of my son is like no other. I say this as one that lived with all the colors of the rainbow across my body. I still have tender spots on my scalp some 53+ years later where I was picked up by my hair only to be slapped down again. When it was over, my job was to sweep up the hair off the floor.

I have an extremely high tolerance for all types of pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.
This is why I said largely, it is like saying our tax dollars in America go towards good things, it isn't a full picture. Like standard corrupted models (e.g. the bible) there are valid mechanisms to rationalize it's necessity or goodness. For example I think suicide numbers are more prevalent with people who follow a psychiatrists advice (the drug route). I am not saying there is no validity in the entire system, anywhere in mental "health." You are missing the point......if people want to drug their minds into oblivion I said my piece. Mental health is a trap for relatively healthy people.

[RunningDeer]

You are missing the point......

Omni, Omni, Omni…




The current mental "health" system is largely about drugging an individual. I'm not sure what worked for you but I see it as a poisonous and toxic ideology in it's current state. Do you mean a therapist or self work? Because I mean psychiatry.

I was admitted for a three day suicide watch. It was a b s o l u t e l y, without a doubt necessary. I had weekly sessions with a therapist and took drugs. The most important part of my recovery was the self-work; part of that was to show my son you don’t quit.

The loss of my son is like no other. I say this as one that lived with all the colors of the rainbow across my body. I still have tender spots on my scalp some 53+ years later where I was picked up by my hair only to be slapped down again. When it was over, my job was to sweep up the hair off the floor.

I have an extremely high tolerance for all types of pain. Without a doubt, if it wasn’t for the timely suicide intervention, I would not have made it.

To those in pain: explore ALL options. Suicide is NOT one of them.
This is why I said largely, it is like saying our tax dollars in America go towards good things, it isn't a full picture. Like standard corrupted models (e.g. the bible) there are valid mechanisms to rationalize it's necessity or goodness. For example I think suicide numbers are more prevalent with people who follow a psychiatrists advice (the drug route). I am not saying there is no validity in the entire system, anywhere in mental "health." You are missing the point......if people want to drug their minds into oblivion I said my piece. Mental health is a trap for relatively healthy people.

[Dennis Leahy]

Always remember, when dealing with people within the Western medical sphere, that the phrase "evidence-based medicine", logical sounding as it is, is a carefully-crafted filtering mechanism to ostracize alternative medicine. They only thing the medical establishment consider "evidence" are results from drug company studies. Just because some pharmaceutical company has not committed a couple of hundred million dollars to a study that ginger can calm an upset stomach, or that aloe vera can do near-miraculous healing to sunburn, or that any other tried-and-tested-true alternative can do what thousands of 'regular folks' have witnessed, doesn't mean they are not valid. But the medical establishment have accepted the "evidence-based medicine is the only valid medicine" gambit hook, line, and sinker.

You know where you were when JFK was murdered? I know where I was when I first heard the phrase "evidence-based medicine." I have mentally marked it because I quickly figured out that the intent was to invalidate everyone but pharmaceutical companies from modern, Western medicine.

Mike, have you StartPaged (we don't "google", do we?) this: Hidradenitis Suppurativa cannabinoid

If you do, you'll find this article I just found:
Declining Skin Surgery to Try Cannabis Oil (https://illegallyhealed.com/declining-skin-surgery-to-try-cannabis-oil/)


"...instantly relieved her pain. Within five months, all the HS related wounds had nearly disappeared, and Mandy also lost 50 pounds. She finally felt liberated and free. ...
...
...When I was suffering of large wounds I applied cannabis oil directly into the holes and watched it melt into the tunnel. A couple of weeks later and the tunnel had healed to the surface. Cannabis oil has given me my life back. I no longer dread waking up every morning. It is not agonizing to walk or wear clothes. I finally feel I am at peace with myself. Hidradenitis Suppurativa tried to take everything from me. Emotionally I did not know how to cope with my reality. Was I really destined to endure such invasive surgery all throughout my life? Should I really be consuming so many synthetic chemicals without ever truly finding relief? I had so many questions and so much pain. I got lost in the depths of my own self-pity and no longer felt worthy of anyone or anything. I have experienced something that must be shared with others. Cannabis can not only treat and heal cancer, seizures, M.S. etc. It can heal Hidradenitis Suppurativa. Now cannabis needs to be recognized so this medicine can be accessible to all sufferers. I feel I owe it to humanity to share my story and spread awareness.” – Mandy J." -and-

Hidradenitis Suppurativa and Rick Simpson (CBD) Oil (http://www.abovetopsecret.com/forum/thread1030422/pg1)


"...I decided that giving CBD oil a try to see if it would help. Within 5 days my wound closed up and healed over!...
...
...I am not saying this is a cure all, or that it cures HS, but it helped me when nothing else has. I am amazed that CBD oil has done for me what no antibiotic, accutane, home remedies or other treatment has done. " It sounds promising. Maybe it will give your friend some hope - real hope, not false hope. [[If he says, "yes!", then we need to talk about sourcing high-quality, fully extracted, CBD. ]]

[Mike]

Hi Dennis! Thanks for all that!:thumbsup:

My friend with the HS is taking cbd. It's prevented a tragedy from becoming a hell. It's helped him quite a bit! I think youre spot on with everything you wrote, as usual.

I take cbd too. Twice a day. It really is a godsend

[Tomkoyote]

In my previous post I forgot an important detail: do not take AC with others products such as supplements, THC, CBD, etc.... Nothing bad will happen, just that AC will displace them.
Sorry for the omission.

[onawah]

Mike, your friend might find some encouragement and good advice from watching this series about cannabis : https://two.thesacredplant.com/docuseries?utm_campaign=s2-june-2018&utm_medium=orgFB&utm_source=GIA&utm_content=opt-in-lander&utm_term=int-aff&oprid=46900

This Sacred Plant Prevents, Treats and Even Beats Cancer, Chronic Pain, Anxiety, Autoimmune Conditions, And Hundreds of Diseases
There seems to be a community building of people getting relief from CBD, etc. and perhaps it would help your friend's state of mind to become involved with that network, for emotional support. Great that he's taking CBD!

[Advancing HS Perception]

Hi Mike,

No suggestions for treatment. HS has been treated with a multitude of medicines, surgery, radiation, diet and alternative treatments & lifestyle modifications since first described in 1833. Hidradenitis Suppurativa is still around. I am hopeful though, always. All my best.

[Chris]

If you are interested in how Mike's friend's healing and recovery is progressing, I posted an update about it on my own thread:

http://projectavalon.net/forum4/showthread.php?103068-Inanna-Channeling-Thread&p=1232473&viewfull=1#post1232473

[MrBlack420]

I wish you to find a solution. I think that you can start from here cannasos.com (https://cannasos.com/).

[happyuk]

Plus 1 on CBD and THC. I will add another wonder herb. goosehttps://oak.ppws.vt.edu/~flessner/weedguide/goosegrass9-4.jpggrass

I've been dispensing free tea and have witness the magic in almost all cases. I have once visited a friend who is suffering from high fever I made him a goose grass tea. While sipping he started perspiring and soon was dense and had to change clothes. Less than an hour fever is gone as if the goose grass kick out all the toxins, via perspiration, that is causing the fever. Goose grass is said to cleanse the blood and nerves. No wonder if toxins is the cause. also my number one immune booster, ganoderma mushroom.
To anyone who wants to try goose grass please read detox reactions I have witness or heard most of them from recipients. My conclusion after years of study and trials is that there is no single miracle cure. We need variety as in food. Well as I have mentioned many times our body works like a factory it produces all kinds of substance that the body needs CBD THC booldcells and all included therefore it needs raw materials, various raw materials. So that when I dispense I give a variety of veggies and known medicinal herbs. But in the modern toxic ages goose grass always comes first. Sheep sorrel and burdock roots and neem are also detox herbs.

+1 for mentioning neem leaves, a noted blood cleanser.

[CurEus]

I have a mild-ish form of HS. The only thing that helps is strictly controlling my diet no grains sugars, yeasts etc.
I have have had 3 surgeries to remove growths including on my tailbone.....VERY painful. I will often have a breakout in my inner thighs as large as a grapefruit that can make it impossible to walk. Stress is a factor.
Hopefully your friend finds some relief.

[CurEus]

I wonder if MMS would help???

[Tomkoyote]

I wonder if MMS would help???
Very likely, but not to be taken with other products like THC, CBD, antioxidants

[CurEus]

Although most cannabis products are legal as of Today I have never understood much about cannabinoids or how they are best employed for healing.

My general awareness about HS is that it is triggered for me by over consumption of grains, and processed foods and stress. As well as areas with skin contacting skin. I did have a lot of acne as a teen but that cleared up as my diet changed. I had a very severe skin condition develop from leaky gut and beer about a decade ago so am VERY careful with grains, legumes and nightshades. I literally had psoriasis, contact dermatitis, eczema....blisters, boils, acne. all develop over night.

If there is a gut connection.........I am staring right at glyphosates and a leaky gut connection. The TED video indicated that gentleman with this issue was also highly vaccine reactive.......I was as well.

Somehow they are related I expect. Dermatologists were useless......so were their ointments and creams.

My GP put me on an organic apple juice fast for a week, his reasoning is that the skin is also an organ that expels toxins so if the kidney and liver are over worked...........the skin will be used to eliminate things.
I think somehow toxins are being eliminated through the sebaceous glands and become clogged/inflamed similar to but not precisely the same way as cystic acne. This can be complicated with ingrown hairs, folliculitis, clogged pores.......there are literally 30 potential complicating/exacerbating factors.

They also tend to become "active" on something of a schedule....I am not able to ascertain if this is hormonal fluxes, cycles of hair growth..........or something else entirely.

I was informed that they diminish as we get older.

My management routine is
1. Diet NO SUGARS, NO GRAINS!!!
2. Keep meticulously clean......quality soap. alcohol, peroxide, colloidal silver,
3. I do not use scented or chemical laden soaps or fabric softeners for my underwear. I use a charcoal soap in that area.
4. I change twice a day 3 times if I work out or exercise
5. I gently exfoliate the areas
6. I keep the area DRY........some people use antiperspirant ( not deodorant) to some effect. Apply with a tool, if there is an infection it would obviously transfer to the deodorant stick
7. Bandage.......I use one that is much larger than the area to A. Prevent irritation B. larger ones means your taping/glue is not on the active area.
8. Warm compresses. I heat distilled water with peroxide.......sometimes it will motivate the area to clear if it presents
like a boil.
I will occasionally use tea tree oil, salycitic acid wash, colloidal silver, rubbing alcohol, peroxide.

I just bought Tumeric /Curcummin which some have mentioned is very helpfull in preventing flare ups but not for permanently "resolving" any active areas. A tumeric poultice may help.

I expect I will have the area ( about the size of a quarter) surgically removed in the winter.

All that I can add is that there seems to be a few "types" one is usually close to the surface and will eventually erupt and similarly to a cyst/boil/acne. The others are quite deep and they can take a few weeks to surface and clear. COuld be in agony for a few weeks......

I have used something called Pridd Drawing Salve which is "supposed" to draw an infection to the surface. I found it messy but some people find that it is very helpful. There are veterinary versions that are "stronger" Often used for horses with ulcers, boils, splinters. I think it is coal tar........

I would posit that if pores, glands, follicles are blocked........sauna and infrared therapies may be helpful. But again there are so many ways this presents medically it is difficult to say "this WILL work"

My next option is to look at Iodine...... PCOS which is a cyst forming condition in the ovaries and responds to iodine therapyy........ I dunno though.
Other option is laser hair therapy that kills the hair follicles.

Sometimes I want to chat with the drunk engineer who designed the human body.......seriously, you made some mistakes! Or maybe I should be chatting with the drunk vaccine scientist who probably knows better and chooses to be silent?