Help with Fibromialgia needed.

[Czarek]

Someone very dear to me may be suffering from Fibromialgia. If you have any information that may direct me to information of treatment, better understading of this disease, please share your findings/files here.
Thank you so much. :hail:

Czarek

[nomadguy]

It might be beneficial to make an effort to monitor and balance the blood alkalinity.
A long the same lines is metal toxicity. Metals can overtime build in the joints and in the organs. I have seen where some people who have heavy metals in there body also have Fibromialgia symptoms.

Another thing to consider is the intake of sugars and gluten rich carbs. A sugary diet will keep the blood in a acrid state.
In the article below recommends a sugar free diet, I happen to agree and not just for people with Fibromialgia, but for all people even if you do not have any symptoms. A sugary diet leads to health problems.
link (http://www.greatplainslaboratory.com/home/eng/fibromyalgia.asp)

[DeDukshyn]

I did a quick search (http://www.aor.ca/?s=fibromyialgia) on the AOR website (natural supplement company I work for) and found three natural products that have scientific support for alleviating fibromialgia symptoms:All three should be available by your favourite supplement supplier (granted they aren't owned by big pharma ;-):


5HTP: http://www.aor.ca/products-page/5-htp-l-5-hydroxytryptophan/tryfonia/

Ribogen with magnesium (or D-Ribose w/magnesium): http://www.aor.ca/products-page/classic/ribogen_mg/

Magnesium Malate: http://www.aor.ca/products-page/classic/magnesium-malate-renew-4/

As I said, none of these are proprietary, so they should be available in other brands, but just watch out for established quality vendors. On each of the pages I linked to, the valuable information will be in the "Research" tab section.

I work for AOR and the products should be fairly available all across Canada in supplement and health food stores. I can vouch for their quality, this company is very different from most supplement companies, in the sense they source and test all their own materials, manufacture almost all their own products, have almost pharma level of care in their attention to efficacy, safety and quality of materials (probably better, lol), and put millions into research each year, but like I said, if you have favourite brand you trust, try to find these ingredients by them -- none of these products are specific to AOR, and I'm on salary so I have no gain. ;)

Feel free to utilize the research on their site though, -- that is what it is there for.

Good luck!

¤=[Post Update]=¤


It might be beneficial to make an effort to monitor and balance the blood alkalinity.
A long the same lines is metal toxicity. Metals can overtime build in the joints and in the organs. I have seen where some people who have heavy metals in there body also have Fibromialgia symptoms.

Another thing to consider is the intake of sugars and gluten rich carbs. A sugary diet will keep the blood in a acrid state.
In the article below recommends a sugar free diet, I happen to agree and not just for people with Fibromialgia, but for all people even if you do not have any symptoms. A sugary diet leads to health problems.
link (http://www.greatplainslaboratory.com/home/eng/fibromyalgia.asp)

This is standard advice for ALL ailments! Well said Nomadguy!

[Guest]

The healing form of Chi Gong -Chi Kung is known to help with fibromyalgia.

Type into your search engine, Healing Chi Gong to find a practitioner.

Magnesium is also very good.


Love


Nora

[Daughter of Time]

All above advice is very good and should be followed.

Fibromyalgia is an inflammation and will benefit greatly from detoxification and high quality supplementation. A strict diet removing sugar, gluten and all inflammatory substances is a necessity.

Tell your friend to subscribe to the free newsletter at: info@fibroandfatigue.com

You state you are from Ontario. If your friend lives anywhere near Toronto, ask her/him to get in touch with the:

Environmental Health Clinic
76 Grenville Street
Toronto, On M5S 1B2
416-323-7711

If the Environmental Health Clinic grants her a visit, they are covered by OHIP and they do tests including heavy metals (often the cause of fibromyalgia) for free. These tests are not covered by OHIP if one goes through a Naturopath or a private clinic, but the EHC will do them if they accept her into their offices.

[Ellisa]

As Fibromyalgia is an inflammatory condition it's important to find sources of anti-infammatory foods and treatments, and, like everything else, it is best to keep weight down. It is unfortunate that cortisone and some other steroids work so extremely successfully against this condition, as I know very well! However they are not good for long term use. There are plenty of lists of 'good' foods etc available from health practitioners and on-line. Garlic is one and broccoli and cabbage-type veg, also Omega 3 products and fruit. Magnesium is good and glucosamine and once before on this site someone suggested pine pollen! Taking vit C is a good idea too. Sometimes acupuncture helps.

Fibromyalgia seems to go away and reappear. I find it worse in damp weather (even warm damp weather) and can often predict a rainy spell. It is a difficult condition to deal with as it is so unpredictable.

There is a lot of info on-line some of which is helpful- but there is also a lot of unhelpful suggestions.

Good luck with it-- I hope you find something that helps you, it does seem with this thing that individuals have different reactions to the various treatments, so keep looking.

[Tesla_WTC_Solution]

I know some people will disagree, but please consider medical marijuana for your loved one

http://www.medicalmarijuana.net/uses-and-treatments/fibromyalgia/

Why Medical Marijuana Can Help to Treat Fibromyalgia
Fibromyalgia is a chronic pain syndrome which is characterized by diffuse muscle and joint pain. Fibromyalgia may also be referred to as Fibromyositis or Fibrositis. In addition to the chronic pain common to most or all Fibromyalgia patients, Fibromyalgia symptoms may include insomnia, depression, skin conditions, hypoglycemia, a loss of mental acuity, fatigue, gentiurinary complications, and more. Many of these symptoms can be reduced or alleviated by using medical marijuana as prescribed by an experienced medical marijuana doctor.
Medical marijuana for Fibromyalgia patients works well due to the natural pain relieving properties of THC and other cannabinoids found in cannabis. A 2006 study found that THC, a primary substance found in medical marijuana, reduced both chronic pain and experimentally induced pain by at least 50 percent in all patients who completed the THC therapy trial. In addition, clinical trials found that Nabilone, a synthetic medical marijuana pill, reduced pain and anxiety significantly in Fibromyalgia patients.
While Nabilone is an option for people with Fibromyalgia who live in states where medical marijuana is not yet legal, patients in states with legal medical marijuana may well find medicinal marijuana to be more cost-effective than Nabilone, as well as more effective in relieving Fibromyalgia symptoms. Medical marijuana is also all-natural and usually distributed by locally owned small businesses, rather than pharmaceutical corporations.

[Mu2143]

....................

[parcival]

I work in the field of Epidemiology.

Fibromyalgia is Lyme's Disease...Need to treat it as an infectious bacterial disease.

[soleil]

wow thank you all for the links and help on this. my mom suffers from fybromyalgia. however, she is a big believer in pharma and her doctor (pill pusher). and pretty much ignores anything i send her. i wish she would cut her aspartame/sucralose intake, because she thinks its better than real sugar. and she believes everything on the news/dr oz. so when the day shes ready to listen to me, i'll be glad this thread is here. :)

[WhiteFeather]

Diet is important here. If your friend is using artifical sweeteners, tell this person to stop using it immediately. I would recommend the use of Chlorella to remove toxic impurities as well as Para Shield to remove parasites from this persons body. Raw Garlic is a wonder herb in itself also. MMS by Jim Humble is also to be considered.

Parasites are what contribute and are causes to most illness and cancers. Words by Dr Hulda Clark P.HD.
Read the first 30 Pages here. It will explain. http://www.free-energy-info.com/Hulda.pdf

Para Shield by Www.gaiaherbs.com has the 3 ingredients contained in it as recommended by Dr Hulda Clark.
Black Walnut Hulls
Wormwood
Cloves

Give this thread a read. http://projectavalon.net/forum4/showthread.php?54153-Parasites-Cause-Cancer-by-Dr.-Hulda-Clark


http://i.pgcdn.com/pi/72/30/12/723012434_260.jpg
http://gaiaprofessional.com/uploads/original/ParaShield_ProfessionalSolutions_60ctSupfax_004-588-0512-1349290737.jpg

See what resonates with you here.
Your doing a valuable service to your friend. Kudos

W.f.

[Scorsha]

lots of good info here about fibromyalgia. :)

diet is very important and all of the main things were hit, being a healthy diet where refined sugars, artificial sweeteners and processed grains/foods are kept at a minimal (or avoided/cut out of the diet) as these can help increase inflammation. adding more fruits, veggies (lightly cooked) and eating more fish/chicken and a balance of eating red meats (like beef or pork) can assist in maintaining the pain levels, decreasing swelling and decreasing the chance of flare-ups.

taking supplements to help with muscles health, such as magnesium/potassium/calcium is recommended as well as maintaining your B vitamins such as B1, B5, B6 and B12, as a decrease in these can help with overall general myalgia (whole body pain). taking a multivitamin just helps to cover all of the bases here especially if your diet is lacking in fruits and veggies.

Fibromyalgia Syndrome (FM) is considered to be a borderline auto-immune syndrome, which can be a warning sign to a full-blown autoimmune disease such as Lupus or Rheumatoid Arthritis. Maintaining your immunity health is important to be focused on here and in chinese medicine theory, a decreased immunity (Wei Qi Deficiency) is one of the key reasons for FM.

Another good tip with FM is to maintain your stress levels, be it physical, environmental, emotional, mental, energetic, spiritual, energetic or psychic, etc. Stress of one of the key triggers of FM, such as a damp/rainy day can trigger a flare-up, a bad day at work or even having an joyous exciting day at disneyland. exercising weekly and finding a way to help you deal with your daily stress (such as meditation, Qi Gong, yoga, etc) may help in decreasing pain levels and muscles symptoms.

For me with my FM, conventional drugs and treatments didnt work AT ALL. i turned to acupuncture and chinese herbal remedies to help with my FM and after a few years of treatment, my FM was 90% control. 14 years later, i will only have flare-ups only during very stressful times like a family emergency or a severe change in the weather for instance. i highly recommend seeking alternative holistic medicine with practices such as chiropractic, naturopathy, osteopathy, massage therapy, reiki, traditional chinese medicine and ayurveda (traditional indian medicine). focusing on your "whole" being helps with maintaining FM to tolerable levels for better quality of life.

another thing to consider with FM is that there can be a energetic/psychic element to it. many sufferers are those that are sensitive to stimuli that are beyond the 5 senses, like empaths, mediums, highly sensitive people and others with physic/energetic abilities. educating yourself about your sensitivity to the world around you can be a big step into getting FM under control if one is an empath or energetically sensitive individual. for this, in my experience, i found that Bach Flower Remedies (a great/invaluable tool) can also help with this kind of energetic/psychic stress.

i hope this basic (long) introduction is helpful. :)

[Poly Hedra]

If you google a documentary called Aspartame, Sweet Misery: A poisoned world.
It shows how the link between the artificial sweetener aspartame can create the symptoms. Of MS, fibromyalgia and chronic fatigue syndrome.

The people in this docu warre all normal, every day people, usually women in their mid 40's to 50's.
The connection that was made between all these people was the amount of diet drinks they all drank.
Your mum might find this docu more acceptable to watch as it is not a conspiracy or any type of alternative treatments documentary.

If there was some way you could watch it with her I think she could take heed.
Best of luck.

[Tesla_WTC_Solution]

aspartame can ruin your retinas, can't it?

[william r sanford72]

have you thought about honey bee venom?? there is research that seems to back the benifits of controlled stings on people with joint problems and ms.dont recommend going out and getting stung if your allergic...but it is something you might want to research?? the stings dont hurt as bad as the thought of getting stung...

[bruno dante]

Please refer to the research of Dr Teitelbaum. His methods are the most.comprehensive I've ever seen for fibro and CFS.

He has his own site and has written what I consider to be a the definitive book on the topic: From Fatigued To Fantastic.

Best of.luck to you!

[Mu2143]

.....................................

[conk]

aspartame can ruin your retinas, can't it?It can ruin your everything. It's a neuro-toxin and a carcinogen. Bad, bad news all 'round.

The idea of Fibro being Lyme should be taken seriously. Many ailments, particularly MS, are now suspected of being Lyme. And if you drill down far enough you find the origins of Lyme. Guess who? Yep, it comes from the same labs as HIV, SARS, and many other nasty agents of death and disease. Sadly, Lyme is very hard to kill. Antibiotics simply will not do it. Go to curezone.com for good remedies.

[Mu2143]

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[Czarek]

Thank you all for this valuable input. So far, I’ve been able to determine that there was exposure to mercury. Although only one tooth was affected (and recently properly replaced by holistic dentist thanks to me), there is a considerable accumulation of toxins in her liver. After 5 coffee enemas, there is a constant output of metal and sulfur smelling like waste. It would appear that the body is utilizing all of its sulfur reserves to contain toxic waste which liver is unable to properly release.
Will report back with more findings.
Namaste
Czarek

[ThePythonicCow]

Synthetic vitamin C, or ascorbic acid, kills beneficial probiotic bacteria in the gut and cannot confer vitamin activity in the body

Learn more: http://www.naturalnews.com/040147_vitamin_C_ascorbic_acid_synthetic_vitamins.html#ixzz2SA7s442o
That article, though it is on Mike Adam's Natural News website, is by someone called "Zach Calantini-Miller".

Reading the article, I don't agree, and I don't trust it :). "Zach Calantini-Miller" is not someone whose work I've noticed before, so that doesn't help me know what to make of this article.

I remain in agreement with the work of Linus Pauling on Ascorbic Acid ... and I take 5 or 10 grams a day of it, at a minimum. As a practical matter, one can only do that using manufactured ascorbic acid (or the equivalent as various salts of ascorbate.)

In particular, saying that ascorbic acid "cannot confer vitamin activity in the body" seems flat out wrong to me.

[DeDukshyn]

Synthetic vitamin C, or ascorbic acid, kills beneficial probiotic bacteria in the gut and cannot confer vitamin activity in the body

Learn more: http://www.naturalnews.com/040147_vitamin_C_ascorbic_acid_synthetic_vitamins.html#ixzz2SA7s442o
That article, though it is on Mike Adam's Natural News website, is by someone called "Zach Calantini-Miller".

Reading the article, I don't agree, and I don't trust it :). "Zach Calantini-Miller" is not someone whose work I've noticed before, so that doesn't help me know what to make of this article.

I remain in agreement with the work of Linus Pauling on Ascorbic Acid ... and I take 5 or 10 grams a day of it, at a minimum. As a practical matter, one can only do that using manufactured ascorbic acid (or the equivalent as various salts of ascorbate.)

In particular, saying that ascorbic acid "cannot confer vitamin activity in the body" seems flat out wrong to me.

The human body is an absolute amazing nano-machine and molecule builder. I also share your concerns with this claim. I think it needs closer scrutiny. If the body needs Vitamin C and needs a few extra molecules to get it from ascorbic acid it will create those molecules. Of the 5000+ known different ones it uses, the only ones the human body can not create on its own are the vitamins and minerals deemed essential (plus perhaps a few not yet known to be essential).

I do know that ascorbic acid is hard on the gut -- which is why I applaud liposomal uptake for Vit C (Paul ;)), but I haven't yet seen any hard evidence of it's effects on gut flora (which would be result of oral dosing)-- that may be worth checking into.

[FraZZleD]

Sorry to hear about her getting Fibromyalgia.
I also have Fibromyalgia. I first got it 18 years ago. That was back when most doctors never even heard of Fibromyalgia. Most doctors told me it was all in my head.
Mine hit me in the middle of the night. I woke up with a sever pain in my back and in my thumb. It was so bad I went to the ER. They told me I hurt myself at work which I knew I didn't. Gave me pain pill prescriptions and sent me on my way. I went to work the very next day. I worked grave yard shift and I could only stay 4 hours before the pain once again became unbearable. I drove home in tears which was a 1/2 hour drive. When I got home I went to get out of the car. I had so much pain in my upper thighs that I just fell to the ground. I couldn't walk at all. I ended up crawling to my front porch no one could help me because it was the middle of the night 4:30 am. When I finally reached the door I just opened it and started screaming. My roommate rushed me to the ER once again.

They had the CDC on the phone with a 3 way call. Trying to figure out what was happening to me. They gave me a cortisone shot after several hours and sent me home once again. At this point I could no longer work. Two days later it attacked my right foot. Tow more days later it attacked my right arm. And finally two more days it attacked my entire body. From that point on I had level 10 pain for the next two years with no relief in sight.

I was put into the hospital and every test under the son was done on me. I passed every test after 4 days of test. Aids, Lyme's Disease, Pregnancy, Thyroid, Diabetes, Cat Scans, X-rays, Drinking powdery stuff with scans, you name the test I probably had it. Nothing, they found nothing. After 4 days of just tests I was sent home with level 10 pain and no answers.

After 2 months I found a Doctor that knew the most about Fibromyalgia. At that time he said we don't know what it is, we don't have anything that works and we don't know what causes it. So I basically became a Ginny pig. I was told to keep a diary to keep track of my pains what the causes and anything that might relieve the pain. I cataloged weather, lights, food, some alarm systems, made my pain worse. I did find out I had NO PAIN what so ever when I got in water. I could only walk if I had the hose on my feet. I borrowed my friends sauna every night and swam as much as I could. Unfortunately I couldn't live in water so I was back to level 10 pain as soon as I got dry.

I found Knox Gelatin joint mixture helped get my pain down to level 8 after 2 years later. I started drinking jogging in a jug also which brought my pain level down to 6. I started taking fish oil and vitamins and minerals which brought my pain down to 5. I even created a tea with everything healing. Honey, vinegar, garlic, which I got use to drinking.

My ultimate cure I found was from a weight lifter guy that I worked with. He was determined to help me find a cure also. He talked me into drinking Protein Whey. After the first week I told him my pain was worse! He said keep drinking it for 1 more week. It takes at least two week for it to get into your system. I said I will try it one more week and if the pain continued I would have to stop. Well at the end of the second week it rained before I got out of work. I DIDN'T KNOW IT RAINED! I HAD NO PAIN! I WAS JUMPING FOR JOY! I HUGGED MY FRIEND AND SAID I DON'T FEEL ANYMORE PAIN! That's when I got on the internet and started telling others about the Protein Whey but it only worked for 1/2 the people. The one's that it did work for was so very grateful to get rid of their pain. I just wished it would work 100% for everyone.

Well it lasted about 2 years until the manufacturer changed the product. I was back in pain again and missing a lot of work. I called the company and asked if they had anymore products anywhere in the USA they said no. I asked if they could give me a list of the changes and they said they couldn't. I was in tears balling my eyes out on the phone to this lady. I told her that was the only product that took my pain away and when they changed it, it no longer worked. I begged and begged and begged her to give me a list of the changes. She finally felt so bad for me that she said she would email me the changes. I had to promise not to tell anyone what was in it. I promised! After two weeks of studying both I figured out everything they added more to except 1 item Amino Acids stayed the same. I went to GNC bought Amino Acids and after a few days I was back to normal. NO PAIN ONCE AGAIN AND I'VE BEEN THAT WAY EVER SINCE.

My list of natural things I take are as follows. Protein Whey (Powder Drink), Amino Acids, (pills for pain) Triple Lecithin (pills for foggy brain), Triple Chlorophyll (pills to rid my body of toxins) Multi Vitamin and Minerals (pills) Fish Oil (pills).

Now I live a normal life pain free as long as I keep taking all this natural stuff. I weaned myself to needing Protein Whey once every two weeks. It took a year to get there!

I lived with level 10 pain 2 years
I lived with level 8 pain 3 years
I lived with level 6 pain 2 years
I lived with level 5 pain 1 year.
After 8 years of pain I was finally free.

I hope this info helps you someway! FraZZleD

[Mu2143]

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[Mu2143]

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[ThePythonicCow]

What I do sometime is to listen randomly to Wolfspirit Radio and at that moment they where talking about Vitamin C and how its made and that it is very toxic. I just stay away from anything Synthetic.I forgot the detais ,but enough to know that it was bad.
I think it was this show with Patrick Jordan only I don't know which one it was.
http://www.wolfspiritradio.com/audio-archive/Dr_Wil_Spencer_An_Alternate_Perspective/2013/

Well, you'll have to get more evidence than that ... a link to some audio archives with an uncertain memory that it's in there somewhere :).

Here's an article that agrees with your position and has more detail: Natural Whole Food Vitamins: Ascorbic Acid Is Not Vitamin C (http://www.thedoctorwithin.com/vitaminc/ascorbic-acid-is-not-vitamin-c/).

From reading that article, I get the sense that this is a smear job on ascorbic acid. Perhaps big pharma is behind this smear. Even though they manufacture most of the ascorbic acid used in supplements, they can't make much money on it, as it is a simple, natural, molecule, so cannot be patented. Indeed, nowadays, Western pharmaceutical companies make even less money on it, as the Chinese have take over most of the production. So if ascorbic acid really is a valuable (and cheap) health supplement, big pharma would much rather have people taking the much smaller quantities available in "natural" sources.

[Mu2143]

....................

[DeDukshyn]

What I do sometime is to listen randomly to Wolfspirit Radio and at that moment they where talking about Vitamin C and how its made and that it is very toxic. I just stay away from anything Synthetic.I forgot the detais ,but enough to know that it was bad.
I think it was this show with Patrick Jordan only I don't know which one it was.
http://www.wolfspiritradio.com/audio-archive/Dr_Wil_Spencer_An_Alternate_Perspective/2013/

Well, you'll have to get more evidence than that ... a link to some audio archives with an uncertain memory that it's in there somewhere :).

Here's an article that agrees with your position and has more detail: Natural Whole Food Vitamins: Ascorbic Acid Is Not Vitamin C (http://www.thedoctorwithin.com/vitaminc/ascorbic-acid-is-not-vitamin-c/).

From reading that article, I get the sense that this is a smear job on ascorbic acid. Perhaps big pharma is behind this smear. Even though they manufacture most of the ascorbic acid used in supplements, they can't make much money on it, as it is a simple, natural, molecule, so cannot be patented. Indeed, nowadays, Western pharmaceutical companies make even less money on it, as the Chinese have take over most of the production. So if ascorbic acid really is a valuable (and cheap) health supplement, big pharma would much rather have people taking the much smaller quantities available in "natural" sources.

What are you on about Paul? Do you mean to say that Big Pharma conducts smear operations on natural ortho molecules because they eat into their profits? Do you mean to say there has been smear campaigns made solely from lies and manufactured / twisted research? Like the "Killer E!" headline from a few years back that was 100% lies? Like the vitamin D overdose propaganda and lies (it takes tens of millions of IUs to overdose)? Like the avoid the sun campaign to keep people from getting their Vit D? Like the recent attempted smear on L-Carnitine?

I don't buy it ;) ;)

(Note: the above piece was written entirely in the new invisible sarcasm font ;))


It should be noted that synthetic doesn't necessarily mean "bad" -- there are some molecules that are far better in their natural forms and others it makes no difference. R-Lipoic is one of those that the synthetic version doesn't get treated the same in the human body, so it should be avoided.

I'll check with some co-workers today if any of them has reviewed these ascorbic acid claims. BTW Paul, China manufactures most of the worlds ascorbic acid ;)

[ThePythonicCow]

Indeed, nowadays, Western pharmaceutical companies make even less money on it, as the Chinese have take over most of the production.


BTW Paul, China manufactures most of the worlds ascorbic acid ;)
yup :)

[ThePythonicCow]

What are you on about Paul? Do you mean to say that Big Pharma conducts smear operations on natural ortho molecules because they eat into their profits?
Well, in this instance, I didn't even have to recall the many other such smear campaigns that big pharma has run, and continues to run, against healthy nutrients.

I just needed to read the words of the article I linked (http://www.thedoctorwithin.com/vitaminc/ascorbic-acid-is-not-vitamin-c/). It is just a barrage of negative sounding, inadequately referenced, over-hyped innuendo, playing on every superficially related "apple pie good, man eating shark bad" bias it can get its grimy hands on.

[Wind]

I've suspected that I might have fibromyalgia since my symptoms are the same as in "chronic fatigue syndrome", "Crohn's disease" and I also have eczema. All that plus my extra active senses! It's sometimes a pain in the ass, but I'm still a pretty happy and a balanced person.

I think that I will find the messages in this thread very useful! Thanks to everyone for the advices!

[DeDukshyn]

I've suspected that I might have fibromyalgia since my symptoms are the same as in "chronic fatigue syndrome", "Crohn's disease" and I also have eczema. All that plus my extra active senses! It's sometimes a pain in the ass, but I'm still a pretty happy and a balanced person.

I think that I will find the messages in this thread very useful! Thanks to everyone for the advices!

Mostly autoimmune issues ... make sure to get lots of vit D (1000 - 5000 iu / day or some of sun on skin)

BTW I am in the process of constructing a video on IBS and IBD for work. Might be useful info in there for you as far as natural remedies, I'll try to remember you when I get it done.

[Pam]

This may seem very simplistic but it is essential to stay hydrated with lots of pure water. There was a time where I would have sworn I had fibromyalgia. I became diligent in drinking large amts. of pure water rather than the carbonated mineral type water I had been drinking..Before I did this my muscles were very painful if touched, a couple of months later it was 80% improved. I believe there was a build up of toxins in the muscle tissues that caused a lot of pain.The first week after starting the water regiman I had alot of body aches which is a good indication of detoxing. Also, years of not drinking water very much turned off the natural thirst mechanism...I can't say what is the source of your friends diagnoses but if she is not drinking sufficient amts. of water that is certainly an easy place to start.

[Wind]

Mostly autoimmune issues ... make sure to get lots of vit D (1000 - 5000 iu / day or some of sun on skin)

I've been taking large doses of D-vitamin for years now, and others vitamins and supplements too. Just in the last few years after my awakening I really started to pay attention to my diet and now I'm eating relatively healthy organic food, but I still have a few shortcomings like dark chocolate and coffee... It's not easy to get rid of sugar! And I do drink lots of pure water daily.

The summer lasts here only for about 2-3 months at best. It hasn't even begun yet since it's been a really cold spring.

[sheme]

Just a heads up -always make sure the sell by date on vitamin D is OK it can really screw your liver if it is out of date. love and blessings to all.

[Czarek]

Sorry to hear about her getting Fibromyalgia.
I also have Fibromyalgia. I first got it 18 years ago. That was back when most doctors never even heard of Fibromyalgia. Most doctors told me it was all in my head.
Mine hit me in the middle of the night. I woke up with a sever pain in my back and in my thumb. It was so bad I went to the ER. They told me I hurt myself at work which I knew I didn't. Gave me pain pill prescriptions and sent me on my way. I went to work the very next day. I worked grave yard shift and I could only stay 4 hours before the pain once again became unbearable. I drove home in tears which was a 1/2 hour drive. When I got home I went to get out of the car. I had so much pain in my upper thighs that I just fell to the ground. I couldn't walk at all. I ended up crawling to my front porch no one could help me because it was the middle of the night 4:30 am. When I finally reached the door I just opened it and started screaming. My roommate rushed me to the ER once again.

They had the CDC on the phone with a 3 way call. Trying to figure out what was happening to me. They gave me a cortisone shot after several hours and sent me home once again. At this point I could no longer work. Two days later it attacked my right foot. Tow more days later it attacked my right arm. And finally two more days it attacked my entire body. From that point on I had level 10 pain for the next two years with no relief in sight.

I was put into the hospital and every test under the son was done on me. I passed every test after 4 days of test. Aids, Lyme's Disease, Pregnancy, Thyroid, Diabetes, Cat Scans, X-rays, Drinking powdery stuff with scans, you name the test I probably had it. Nothing, they found nothing. After 4 days of just tests I was sent home with level 10 pain and no answers.

After 2 months I found a Doctor that knew the most about Fibromyalgia. At that time he said we don't know what it is, we don't have anything that works and we don't know what causes it. So I basically became a Ginny pig. I was told to keep a diary to keep track of my pains what the causes and anything that might relieve the pain. I cataloged weather, lights, food, some alarm systems, made my pain worse. I did find out I had NO PAIN what so ever when I got in water. I could only walk if I had the hose on my feet. I borrowed my friends sauna every night and swam as much as I could. Unfortunately I couldn't live in water so I was back to level 10 pain as soon as I got dry.

I found Knox Gelatin joint mixture helped get my pain down to level 8 after 2 years later. I started drinking jogging in a jug also which brought my pain level down to 6. I started taking fish oil and vitamins and minerals which brought my pain down to 5. I even created a tea with everything healing. Honey, vinegar, garlic, which I got use to drinking.

My ultimate cure I found was from a weight lifter guy that I worked with. He was determined to help me find a cure also. He talked me into drinking Protein Whey. After the first week I told him my pain was worse! He said keep drinking it for 1 more week. It takes at least two week for it to get into your system. I said I will try it one more week and if the pain continued I would have to stop. Well at the end of the second week it rained before I got out of work. I DIDN'T KNOW IT RAINED! I HAD NO PAIN! I WAS JUMPING FOR JOY! I HUGGED MY FRIEND AND SAID I DON'T FEEL ANYMORE PAIN! That's when I got on the internet and started telling others about the Protein Whey but it only worked for 1/2 the people. The one's that it did work for was so very grateful to get rid of their pain. I just wished it would work 100% for everyone.

Well it lasted about 2 years until the manufacturer changed the product. I was back in pain again and missing a lot of work. I called the company and asked if they had anymore products anywhere in the USA they said no. I asked if they could give me a list of the changes and they said they couldn't. I was in tears balling my eyes out on the phone to this lady. I told her that was the only product that took my pain away and when they changed it, it no longer worked. I begged and begged and begged her to give me a list of the changes. She finally felt so bad for me that she said she would email me the changes. I had to promise not to tell anyone what was in it. I promised! After two weeks of studying both I figured out everything they added more to except 1 item Amino Acids stayed the same. I went to GNC bought Amino Acids and after a few days I was back to normal. NO PAIN ONCE AGAIN AND I'VE BEEN THAT WAY EVER SINCE.

My list of natural things I take are as follows. Protein Whey (Powder Drink), Amino Acids, (pills for pain) Triple Lecithin (pills for foggy brain), Triple Chlorophyll (pills to rid my body of toxins) Multi Vitamin and Minerals (pills) Fish Oil (pills).

Now I live a normal life pain free as long as I keep taking all this natural stuff. I weaned myself to needing Protein Whey once every two weeks. It took a year to get there!

I lived with level 10 pain 2 years
I lived with level 8 pain 3 years
I lived with level 6 pain 2 years
I lived with level 5 pain 1 year.
After 8 years of pain I was finally free.

I hope this info helps you someway! FraZZleD

Thank you so much for sharing your story and what an inspiring story it is! I'm so glad you live your life without pain.

[Czarek]

vit D[/B] (1000 - 5000 iu / day or some of sun on skin)


Interesting that you mentioned autoimmune issues. As it turns out, few years back she developed alopecia that stayed with her for about 2 years. She would have patches of missing hair mostly in the back and the side of her head.
Regular intake of vitamin D is so important. I still believe that sun or fermented cod liver oil is the best source of vit.D.

[Czarek]

Just a heads up -always make sure the sell by date on vitamin D is OK it can really screw your liver if it is out of date. love and blessings to all.

Just an FYI, if your source of vit d is fermented cod liver oil like the one from Green Pasture (http://www.greenpasture.org/public/Products/ButterCodLiverBlend/index.cfm), you don't have to worry too much about the expiry date. :)

[vano915]

Someone very dear to me may be suffering from Fibromialgia. If you have any information that may direct me to information of treatment, better understading of this disease, please share your findings/files here.
Thank you so much. :hail:

Czarek

I had firbormyalgia and suffered mightily for two years. Then a nutritionist gave me a nutritional supplement: Fibroplex, made by Metagenics. I was pain-free in 24 hours and have been so for over ten years. The fibromyalgia comes back every now and then, but I take a dose of Fibroplex at the first twinge, and make it disappear almost immediately.
Metagenics does not sell in stores -- they market primarily to nutritionists and other health professionals. But you can google the company and order the supplement online. It contains magnesium, vitamin B-6, and malic acid -- nothing scary or dangerous.

Hope you feel better!
Mary

[Czarek]

This may seem very simplistic but it is essential to stay hydrated with lots of pure water. There was a time where I would have sworn I had fibromyalgia. I became diligent in drinking large amts. of pure water rather than the carbonated mineral type water I had been drinking..Before I did this my muscles were very painful if touched, a couple of months later it was 80% improved. I believe there was a build up of toxins in the muscle tissues that caused a lot of pain.The first week after starting the water regiman I had alot of body aches which is a good indication of detoxing. Also, years of not drinking water very much turned off the natural thirst mechanism...I can't say what is the source of your friends diagnoses but if she is not drinking sufficient amts. of water that is certainly an easy place to start.

Drinking lots of water can induce problems. i.e. with big intake of fluid, you also lose a lot of important minerals. From my experience, I tend to drink water when my body tells me to and that tends to be in the morning upon rising, (this is throughout the year). Thirst patterns change depending on the season, amount of sweating, etc. I believe this to paramount as far as intake of water goes.

[Czarek]

Someone very dear to me may be suffering from Fibromialgia. If you have any information that may direct me to information of treatment, better understading of this disease, please share your findings/files here.
Thank you so much. :hail:

Czarek

I had firbormyalgia and suffered mightily for two years. Then a nutritionist gave me a nutritional supplement: Fibroplex, made by Metagenics. I was pain-free in 24 hours and have been so for over ten years. The fibromyalgia comes back every now and then, but I take a dose of Fibroplex at the first twinge, and make it disappear almost immediately.
Metagenics does not sell in stores -- they market primarily to nutritionists and other health professionals. But you can google the company and order the supplement online. It contains magnesium, vitamin B-6, and malic acid -- nothing scary or dangerous.

Hope you feel better!
Mary

Thank you so much for your input. I love personal experiences! I prefer to listen to people's personal solutions over readining journals. Solutions to various problems tend to come out a lot quicker, at least for me. For example, magnesium seems to be very important factor in FM. It appears to be a common factor. I'm curious if you've ever exibited calf muscle pain? And just to be clear here, just because you provide magnesium to your body, it does not automaticaly mean that it'll be utilized. Don't assume, measure.

[FraZZleD]

Thank you all for this valuable input. So far, I’ve been able to determine that there was exposure to mercury. Although only one tooth was affected (and recently properly replaced by holistic dentist thanks to me), there is a considerable accumulation of toxins in her liver. After 5 coffee enemas, there is a constant output of metal and sulfur smelling like waste. It would appear that the body is utilizing all of its sulfur reserves to contain toxic waste which liver is unable to properly release.
Will report back with more findings.
Namaste
Czarek

If your trying to get rid of toxins you might try chlorophyll. It has done amazing things for me. Every time I stood up I would feel faint. I started taking chlorophyll and after ridding my body of toxins I stopped feeling faint.

[kevster]

Like Scorsha mentioned, there is a lot of good information here-it's nice that so many people weighed in on this topic.

Even though I've had fibromyalgia for only six years, I thought I'd mention a few things that have helped me.

I started out using Aleve (naproxen) and Lyrica (pregabalin) for relief, and they both worked well (naproxen was more for my lower back and wrist injuries). But I really wanted a natural alternative, so started trying almost everything I could afford at the time. Thankfully, I'm able to use the following instead of Aleve and Lyrica, and experience an equal amount of relief.

As DeDukshyn, Nora, Ellisa, and Scorsha mentioned, magnesium is one of my mainstays. Not magnesium oxide, though, as it is not bioavailable like the other forms. I also make sure not to take it at the same time as calcium, because I don't want any competition between the two.

The other main weapon I use is turmeric. It took about 3-4 weeks to kick in, but it REALLY helps with the fibro (and my back and wrists). Plus, as most of the members here know, it has many other health benefits as well. Because I'm now very financially challenged, and turmeric is expensive (especially the extract curcumin), I buy the empty gelatin capsules (size "0"), plus the turmeric in bulk, and make my own. A LOT cheaper.

Even though I focus on the two former supplements, I found early on that dopamine precursors also have given me relief. A rheumatologist south of me has supposedly used dopamine boosters to manage fibro-he feels that is the underlying cause-dopamine depletion. His book, 'The Fibromyalgia Solution' (David Dryland, MD), makes a good case, and apparently he had fibro at one time, also. He uses prescription drugs to this end, but I found that mucuna pruriens (velvet bean extract, which contains naturally occuring L-Dopa), or tyrosine, to work fairly well for this. Presently, I take tyrosine 3-4 times a week, since it is involved with producing other neurotransmitters as well, and provides a natural boost to my energy, which is always lacking from the fibro. Tyrosine needs to be taken on an empty stomach, along with vitamin C and B6, to provide the best absorption.

I personally don't know for sure, but I believe there might be some benefit from raising glutathione levels. I think that is why FraZZleD has such good success with the whey protein-it's one of the better ways to raise glutathione. Also, Ellisa had mentioned garlic, and cabbage-like vegetbles (broccoli, etc.) as good to eat for fibro, and these items raise glutathione levels as well. Raising glutathione/L-cysteine might go a long way in helping with the detoxification process, including heavy metals.

[Sidney]

I don't know if anyone has suggest this, but MSM (sulfur) is an excellent addition to the protocol, with any pain/energy problems. We are all depleted of this magnificent nutrient because of the poor condition of the soil. People have had remarkable results using this daily. You may want to check it out.

[Earth Angel]

9qv_cxoZO1E

[onawah]

Fermented foods help with building the immune system and cleaning out toxins. You can make your own at home. Great article with demo from Dr. Mercola here:
http://articles.mercola.com/sites/articles/archive/2013/06/01/fermented-vegetables.aspx?e_cid=20130601_DNL_art_1&utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20130601
I've been adding turmeric to my fermented vegies.
Also making homemade kefir with young green coconuts. YUM!
Lots of probiotics is good for any condition, and the foundation of a healthy gut and immune system.
See Dawn's thread
http://projectavalon.net/forum4/showthread.php?43548-The-gut-of-most-disease...-NOT-what-you-think-