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2nd March 2019 19:06
Link to Post #1
Genetic Tracing your Heritage - Is submitting DNA Safe ?
Advances in Genetic sequencing, computerized analysis for gene patterns has developed a new industry.
Here is how the ads get you to participate:
"TEST your DNA ! Find your ancestors, get your family tree, do you know what percentages of _____ or that _____ you are part of, are you a Native? Maybe you are related to Royalty !" and so forth..
There is a very dark side to doing that.
You are providing directly trace-able information, to many Agencies by simply getting a genetic testing kit and submitting your genetic data back for "analysis".
The DNA services have grown popular without most consumers realizing that their data could be used for purposes other than genealogy, such as forensics, said Benjamin Berkman, a bioethicist at the National Institutes of Health, who wrote about ethical issues of using genealogy data to solve crimes in the Annals of Internal Medicine.
Not so long ago, serious concerns were raised about genetic research because of fears about potential discrimination by insurance companies and employers.
In 2009, the Genetic Information Nondiscrimination Act outlawed discrimination on the basis of genetic information.
Discrimination?
Personal DNA tests are used to help predict genetic risk factors for health complications. 23andMe offers FDA-approved genetic risk reports for inherited breast cancer and colorectal cancer.
The results may allow customers to manage their own health, but can also lead to revelations that are surprising or alarming.
"We're encouraging companies to provide education to consumers about the risks and benefits and unintended consequences of the results," said John Verdi of the Future of Privacy Forum.
Reality check: Commercial DNA-testing services aren't specifically covered by federal privacy rules, such as HIPAA, because they aren't health providers or insurers. They can disclose to whomever they want to, often for a hefty profit. Think about that, you pay for the kit, they get the data, then sell that data at a profit to those who want to know who you are, who are your relatives.
At one point there was a movement to have ALL CHILDREN tested in schools too.
What would testing kids provide - trace-able data for future "crimes" in the minimum committed by the child, or when they grow up. Genetic information is present in saliva, in hair, of course in skin cells and blood. Forensics is able to obtain the slightest amount of data, and then compare against the data-bases who was present at a "crime scene".
Selling privacy
- A firm called Helix acts like an "app store" platform that gives third-party software developers access to parts of customers' DNA data for apps and personalized services that consumers opt into separately. Helix has partnerships with around 25 companies. Fitness and wellness apps are among the most popular, said Elissa Levin, Helix's senior director of clinical affairs and policy.
- Ancestry has worked with Google spinoff Calico to study human longevity.
- It's not the first time genetic data has been used in cold cases. To catch the Golden State Killer last year, police detectives compared crime scene DNA against publicly available genetic data to identify the suspect.
- Drugmakers also want access. Ancestry.com and 23andMe — the largest companies that, combined, have DNA data of 15 million users — both share anonymized genetic data with outside researchers and companies.
- Last summer, 23andMe struck a drug-development deal with GlaxoSmithKline, and it's working on developing its own line of drug treatments.
- FamilyTreeDNA came under fire for voluntarily giving the FBI routine access to its database of more than 1 million users' data, allowing agents to test DNA samples from crime scenes against customers' genetic information to look for family matches. FamilyTreeDNA apologized for not disclosing the agreement to consumers.
Bottom Line
100 million people may be part of commercial genetic databases within the next two years.
Amid controversies over internet companies' collection of personal data, millions are paying to hand over DNA samples to a largely unregulated industry.
It has been observed that law enforcement, employers or insurance companies could end up using that DNA information against people in the data-base. What is to stop that?
Why submit voluntarily tracking information on your genetics, your family, and your heritage?
ref:
A list of Genetic Testing Companies - https://isogg.org/wiki/List_of_DNA_testing_companies
- 23andMe (admixture, adoption, deep ancestry, genealogy) (health and trait reports also available in some countries)
- 23mofang (admixture, deep ancestry, health and traits) A company catering for the Chinese market
- 24 genetics (admixture, exome sequencing, health, paternity, pharmacogenetics, whole genome sequencing) A company catering for the Spanish market
- African Ancestry (deep ancestry)
- AncestrybyDNA (admixture, deep ancestry)
- AncestryDNA, a subsidiary of Ancestry.com (admixture, adoption, genealogy)
- Centrillion Biosciences (aka TribeCode) (admixture, deep ancestry)
- Dante Labs (exome sequencing, health, whole genome sequencing) A test aimed at the European market
- DNA Ancestry and Family Origin (FTDNA affiliate in the Middle East) (admixture, adoption, deep ancestry, full mtDNA sequencing, genealogy)
- DNA Consultants (admixture, deep ancestry)
- DNA Worldwide (formerly a FTDNA partner. See also Living DNA)
- Family Tree DNA (admixture, adoption, deep ancestry, full mtDNA sequencing, genealogy, Y chromosome sequencing)
- Full Genomes Corporation (whole genome sequencing, Y-chromosome sequencing)
- Gene by Gene - the parent company of Family Tree DNA which now incorporates the companies previously known as DNA Traits, DNA DTC and DNA Findings (research, health, exome sequencing, whole genome sequencing)
- Genebase (deep ancestry, genealogy)
- Genera (FTDNA partner in Brazil for ancestry tests) - also performs tests for paternity, fetal gender detection, pharmacogenetics, nutrition and physical traits
- GenoTek (admixture, genealogy, diet and fitness, family planning, health, talents and sports) A company catering for the Russian market
- Genographic Project (admixture, deep ancestry)
- Genos Research Inc (DTC whole exome sequencing; consumer focused healthcare big data spin out from Complete Genomics; Note: no genetic genealogy focus or tools)
- Helix (exome sequencing) US supplier of the Genographic Project Geno 2.0 Next Generation test
- iGENEA (FTDNA affiliate) (admixture, deep ancestry, genealogy)
- Living DNA (admixture, deep ancestry) See also DNA Worldwide
- MyHeritage DNA (admixture, genealogy)
- Oxford Ancestors (deep ancestry)
- Roots for Real (admixture, deep ancestry)
- Sorenson Genomics (laboratory services)
- Sure Genomics (whole genome sequencing and interpretation)
- TribeCode See Centrillion Biosciences
- Veritas Genetics (whole genome sequencing and interpretation)
- WeGene (admixture, deep ancestry, health, sports, traits) A test tailored for the East Asian market
- YSEQ (custom Y-SNPs, Y-STRs, SNP panels, whole genome sequencing)
- Yoogene (deep ancestry - YSTRs and mtDNA) A company catering for the Chinese market
definition:
Genetic ancestry tests exploit the findings of population genetics research to provide inferences about someone's genetic heritage and ethnicity.
The tests are also sometimes known as genetic heritage tests or DNA ancestry tests.
Genetic ancestry testing is generally distinct from the more rigorous discipline of genetic genealogy which combines a genealogical DNA test with genealogical and historical records.
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2nd March 2019 21:26
Link to Post #2
Re: Genetic Tracing your Heritage - Is submitting DNA Safe ?
It seems to me it gets worse.. Submitting your DNA to Agencies for categorizing, data-tracking, movement tracking (and forensics) is a dangerous practice.
Why?
Well, it's called:
NEXT GENERATION BIOWEAPONS
The Technology of Genetic Engineering, Applied to BioWarFare and Bio-Terrorism
and it was a report written by an USAF colonel, Mike Ainscough, presented at the Air War College, Air University, Maxwell AFB, Alabama - part of the Future Warfare Series, #14
the PDF here: https://fas.org/irp/threat/cbw/nextgen.pdf (if PDF is not viewable in the FORUM, download directly from the link for more data)
the PDF explores the BIO-ETHNIC-WEAPON
a weapon tailored to a specific gene code, to monopolize on weaknesses in the immune system, to manipulate, or turn on cancers, or heart attacks, or organ failures, and make it seem purely "natural". A way to take out or control or modify whole races, or groups of people..
This was in the works as early is 1989 when the technology was in its infancy.
In 1992, the spring, "Temple Fortune", a bio-plague program was off and running.. developed previous by the Soviets to evolve genetically engineered bacteria and viruses, to go after specific groups. A bug which would not attack those with a specific genetic sequence but would attack those without the "protective code".
Point being, there definitely is a sinister side to "providing" your genetic data to a third party with gene analysis skills.. Where it goes, how it is used is open to discussion...
Last edited by Bob; 3rd March 2019 at 17:21.
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3rd March 2019 06:24
Link to Post #3