Posted by Journeyman
(here)
Posted by Mashika
(here)
Posted by Journeyman
(here)
I'm a little late to the party but I wanted to second the good advice offered here:
and elsewhere in the thread regarding gluten or other food intolerance. I suffered from AF and chronic chest pains for years. Having been 'cleared' by a cardiologist after completing a 24hr trace and sonar check I was effectively told to get on with it.
Many years later I went on an elimination diet for unrelated reasons and in the process my heart issues stopped along with a plethora of other symptoms which I'd never connected as being related. Whether the heart issues were related to the gluten intake reducing my capacity to process potassium was a question I never got resolved. I tested negative for coeliac after a challenge, but after my bodies reaction to going back on gluten I had all the evidence I needed and there's nothing that medicine would do with a positive diagnosis other than tell me to avoid gluten so that was the end of that.
A strict gluten and dairy free diet has done wonders for my health, if not my choice of restaurants! I still get the occasional reminder now, which I think may be down to tiny amounts of cross contamination which sometimes occur even if you're being super careful.
Of course what worked for me, may not work for others, but I found personal testimony very useful when tracking down my own issues with food intolerance and hopefully the same may be true for others. Certainly when faced with the initially daunting prospect of losing a lot of favoured food (and drink
) then it helped to see that for others it was a price more than worth paying.
Wishing Amy and anyone else who has suffered from this sincere best wishes.
Thanks for your kind advice and perspective Journeyman
It is very unfortunate that it doesn't work for others the same as for me, In my case, i stilll have lots of issues, regardless of diet and all cares, i still suddenly have to go emergency room in bad ways from time and again
Just had another episode a couple days ago, no matter what it keeps happening and no diet or doctor has been able to fix it, i'm "Amy" by the way
I guess is just that i can't keep going this way, but my body somehow got damaged
I have been testing lots of things, most came from this thread, i still was not able to get into a good track after a time. Even after feeling well for a few weeks, i come back to feeling terrible again, and tons of pain sometimes, i'm just like this
I don't really mind, i understand this, i am very thankful for all the help and care i got and still get. You go forward as much as you can, right? if you get to 90, you got to 90, or whatever, So it's just a matter of keep going strong, so far nothing has made it better but i don't give up, that's a primary thing, to never give up
It's the most important thing. Keep that attitude and it will serve you well.
I hope you don't mind if I go back to diet, even though you may have decided it's not relevant. The reason is that I had so many different things happening with me that I was convinced were separate. Some of them resolved with an initial diet change, some took a lot longer, then I found I had a second issue with dairy after years of thinking I'd got all the answers I would.
Hyperglycaemia was one issue, I had multiple diabetes tests and used to drink massive amounts of water. I'd have shaking fingers. POTS, was another, which I still get faint reminders of now.
What I found really helpful was keeping a diary. Noting several times a day how I was feeling, both mentally and physically, what I'd eaten and drank, any medication I was taking etc. You effectively become your own science experiment. It helped me in a couple of ways. Firstly, it's action and taking action is empowering in itself. Secondly, it's an amazing way to track causes which may take hours or even days to manifest in your body.
For example, I got a rash and was able to track it down to something I ate 3 days before. That gave me data on how that food could trigger that condition. I was able to trace the onset of depression and just knowing that it had a physical trigger was immensely freeing for me.
Some things took a lot longer to resolve, I was getting improvements months after changing my lifestyle. Without a diary I would never have made those connections and would've told myself that the diet changes didn't work and gone on to look for something else.
When it became time to do a gluten challenge for testing purposes, the diary helped me track the gradual decline in my mental and physical state as each symptom returned. It gave me all the evidence I needed to be strict on the diet once the challenge period was over.
One of the posts further back from Tomkat struck a chord with me. He mentions doing an elimination diet, I wondered if you'd tried that? It's something that takes a bit of planning and it could forever ruin chicken soup for you, but it can be very helpful in tracking down anything which your body isn't dealing well with. A food diary is a very important part of that too.
Of course this is me and you are you. So I know this may not be the case for you or others, but autoimmune conditions are very tricky things to pin down and the diary may just give you a different way of approaching this and some useful data at the end of it.
Keep that positive attitude, sending you best wishes!